Does anyone else enjoy watching those Buzzfeed-type videos where they show people with something different about them sharing their thoughts on rude comments they receive? I watched a fair few (okay, it was a whole afternoon binging them) and the one thing I wish they all did was share ideas of what is okay to say to someone who is different.
I live with an eating disorder. These are chronic health illnesses that can kill people, if they do not receive adequate medical care. Eating disorders are different for each person, and their treatment is unique as well.
There is a ton of stigma surrounding all kinds of mental health conditions, but eating disorders can be especially tricky. Yes, the disease exists inside of my head, but it affects my behaviors and my outward appearance. Malnutrition is a messy beast that can leave long-term effects on a person, physically and psychologically.
It took me a long time to open up to tell people about my diagnosis. Most people did not understand it, and I didn’t fully understand it myself, even after lots and lots of therapy. And no one ever knows what to say when someone they know tells them they have a life-threatening illness, but there’s sadly so much misinformation about eating disorders, that it becomes even harder.
5 things not to say to someone with an eating disorder:
- “But you look fantastic!”
Thank you, I spent a long time pairing my outfit with this eyeshadow look.
It can be easy to hide behind clothes and makeup, to give a glamour of health. Listen, I don’t give a damn about the number on the scale. I didn’t when I was heavier, and I don’t now. Health is about so much more than what you look like on the outside.
- “You should eat something.”
If I could, don’t you think I would?
My boss said this to me as I left for my lunch break one day. I was flabbergasted. No one chooses to have an eating disorder, just like no one chooses to have any other mental health disorder, or health problem.
- “That’s just a thing young people/women get.”
No one says that about cancer patients.
Eating disorders do not discriminate. They don’t care how old or young you are, how much money is in your bank account, or what else is going on in your life.
- “So you don’t like food?”
*Insert facepalm emoji.*
I love food, actually, I just have an incredibly hard time eating it. I love to cook and bake, feel the ingredients in my hands and smell a meal coming together. It has less to do with food and more to do with intrusive, anxious thoughts; at least for me. Boy oh boy, do I love chocolate, especially a bar of dark with some crunchy bits while reading a book…
- “I wish I had your discipline, but I love _____ too much to be skinny.”
Guess what? I’ve been “chubby” too – and I love who I am regardless.
It’s not about discipline, it’s not about being skinny, it’s not about weight loss. Educate yourself on what an eating disorder really is, and you’ll see how complex they can be. On a good day, yes, I eat “healthy” foods, but I also will eat the second cookie if I want. An eating disorder is so hard to explain because at it’s core, it isn’t about the food. It is not a diet. It is a disease.
Yes, I have had all these things said to me before. Mostly by other women, and all of them by people who did not know how much I was struggling. I want to share this to help break down the stigma, and because I want you to know that you are not alone.
5 things you can say to someone with an eating disorder
- “I am here for you. I may not understand, but I care about you and want to see you succeed.”
Being there, emotionally, for someone to lean on, can be tough. We are often wrapped up in ourselves, but when we open up to be present for others and help them through a challenging time, your relationship with that person can only improve.
- “Tell me how I can help support you.”
I made it a point to make lists for my husband, parents, and best friend of things I need from them when I have an episode and am really struggling with my eating disorder or anxiety, because they kinda go hand in hand for me. It was hard to share that with them, because it felt so personal, but all they wanted was to know how to help.
- “What are some signs I can watch for when I’m with you to help you manage this?”
I was not the first one to notice the signs of my eating disorder because I struggled with disordered eating prior to be diagnosis. Now that I’m working on recovery, I do keep note of my thoughts and behaviors around food.
I learned from a series of bad panic attacks when I was first diagnosed with anxiety that I needed to tell people I was around regularly when an attack was beginning, and I apply that to my eating disorder to. Recovery is really freaking hard, but the people that love you only want to help you feel better. So tell them if something could trigger an unwanted response.
Yes, absolutely! (Provided you take COVID precautions.) Physical affection means so much to some people, and it can be emotionally grueling to tell someone about your illness. Simply offering a gentle touch goes miles in reassurance.
- “So… Can I still come over to watch The Vampire Diaries tomorrow night?”
This one sounds flippant and stupid, but all I wanted when I was diagnosed was the people I loved to still see me for me. And I still wanted to be included. Make plans with people, because we all need connection.
Actually, these are things you can say to someone struggling with other mental illnesses too.
You are not weak for needing help, for wanting help. Asking for help is one of the most courageous things you can ever do, even if it is the most scary.
So what do I say when someone asks me something inappropriate about my eating disorder now? I literally give them advice from a dietician I work with: “Everyone is on their own journey.”